A brand new documentary about Céline Dion and her analysis of stiff individual syndrome (SPS) is within the works, with Amazon MGM touchdown the worldwide rights to the movie.
The documentary, titled I Am: Céline Dion, follows the Quebec chanteuse as she is identified with SPS and navigates her first 12 months dwelling with the neurological situation.
“This final couple of years has been such a problem for me, the journey from discovering my situation to studying tips on how to stay with and handle it, however to not let it outline me,” Dion, 55, mentioned in a press release.
Dion shares that she is optimistic in regards to the future and nonetheless plans to return to singing.
“Because the street to resuming my performing profession continues, I’ve realized how a lot I’ve missed it, of having the ability to see my followers. Throughout this absence, I made a decision I wished to doc this a part of my life to assist others who share this analysis.”
The synopsis for the doc reads: “From visiting her couture touring wardrobe and private results to spending time within the recording studio, the documentary captures a worldwide megastar’s never-before-seen personal life. An emotional, energetic, and poetic love letter to music, I Am: Celine Dion captures greater than a 12 months of filming because the legendary singer navigates her journey towards dwelling an open and genuine life amidst sickness.”
The documentary, which can air on Prime Video Canada, has but to be given a launch date.
3:51What’s ‘Stiff-Particular person Syndrome’?
Dion first revealed her analysis to the general public in December 2022, saying the illness doesn’t enable her “to sing the way in which I’m used to.”
She cancelled the remainder of her world tour final Might, apologizing to her followers.
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“I’m so sorry to disappoint all of you as soon as once more,” she mentioned in a press release. “I’m working actually laborious to construct again my energy, however touring could be very troublesome even if you’re 100 per cent.
The transfer got here after she postponed her return to her Las Vegas residency in 2021, citing medical points.
This previous December, Dion’s sister, Claudette Dion informed French-language information web site 7 Jours that her sister can not management sure physique motion, however that the final word aim is “to return to the stage.”
“In what capability? I don’t know,” she added.
And a number of other months earlier, in August, Claudette mentioned that one other of their sisters, Linda, had moved in with Dion to assist together with her care.
“After I name her and she or he’s busy, I communicate to my sister Linda who lives together with her and tells me that she’s working laborious. She’s listening to the highest researchers within the subject of this uncommon illness as a lot as potential,” Claudette informed Le Journal on the time.
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0:34Celine Dion’s sister says singer has misplaced management of her muscular tissues as a consequence of stiff individual syndrome
The reason for SPS, a particularly uncommon illness, remains to be unknown, in response to Yale Drugs, “however researchers suspect that it might be the results of an autoimmune response the place the physique assaults nerve cells within the central nervous system that management muscle motion.”
The title doesn’t do justice to the ache and life-changing signs the syndrome causes, Tara Zier, founding father of the Stiff Particular person Syndrome Analysis Basis, informed The Canadian Press final 12 months.
“Lots of people have challenges with mobility. Many have assisted units for mobility, walkers, wheelchairs. Some persons are bedridden,” she mentioned.
The Stiff Particular person Syndrome Analysis Basis says “the most typical signs of SPS are muscle rigidity, stiffness and spasms within the muscular tissues of the trunk together with the again and limbs.”
These could be triggered by environmental stimuli, like loud noises or emotional stress.
“The muscle spasms could be so extreme they trigger the individual to fall down. The muscular tissues step by step calm down after the stimulus is gone,” the Yale Drugs web site states.
Whereas there is no such thing as a remedy for SPS, when docs deal with sufferers with this situation, Yale Drugs says they give attention to managing the signs with medicines “corresponding to sedatives, muscle relaxants, and steroids.”
0:30Celine Dion struggling to search out medicines for well being battle, sister shares